Jane's 50th birthday
Created by Jane
25th September 2022
This event has closed
Story
As many of you know I lost my amazing son Jared last year to Sudep aged 20. Jared was the love of my life and I miss him so much. So for my 50th birthday this year, I'm asking for donations to SUDEP Action: Making every epilepsy death count. I've chosen this charity because their mission means a lot to me, and I hope that you'll consider contributing as a way of celebrating with me. Every little bit will help me reach my goal. I've included information about SUDEP Action: Making every epilepsy death count below.
SUDEP Action exists to increase awareness of epilepsy risks and tackle all epilepsy deaths, including Sudden Unexpected Death in Epilepsy (SUDEP).
The only UK charity supporting and working alongside those whose loved ones have died suddenly from an epilepsy related death. Services include bereavement support, counselling and help with understanding the inquest process.
The support service is tailored, led by what the bereaved need and want - which can include advocacy, information, advice and involvement in research through The Epilepsy Deaths Register. The support service can also assist and empower families in their interactions with the coronial service and other agencies, this can be combined with ongoing support.
SUDEP Action provide free tools, information and resources are provided to clinicians and people with epilepsy, as well as working in collaboration with UK and international research teams to help prevent epilepsy deaths - striving to get the answers that will save lives.
www.sudep.org
Contact info@sudep.org for more information.
Support team – support@sudep.org or 01235 772852
Epilepsy Deaths Register –
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